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Information related to #devics

My sister was recently diagnosed with Nueromyelitis Optica (NMO). This Auto-Immune Disease is rare, with roughly only 4000 cases in the US. It presents like Multiple Sclerosis, but it's NOT MS, and if often misdiagnosed and mistreated as MS. I created this picture as a way to share my support for my sister and to bring awareness to NMO. #nmo #nueromyelitisoptica #nmoawareness #melissasfight #melissastrong #ilovemysister #multiplesclerosis #ms #NMOismotMS #themoreyouknow #raredisease #autoimmunedisease #shesasurvivor

22 3 May 26, 2018

"Whatever you mean, that came to mind and realized that its all fake but I love to dream and to feel everything, come up, come up, It's so hard to love when you know how it goes..."

145 2 Jun 4, 2018

A recent "bad" hair day, still loving the curls, and showing off that famous pineapple. Also, a picture from just 1 year of chemo... One day, out of nowhere, I got sick. Autoimmune and chronic - meaning, not going the fuck away... I have to take many medications a day, for the rest of my life. Some are chemical and harsh, and despite all my efforts, nothing helped, chemo will stay chemo and I kept losing hair and weight. I haven't had a picture taken for ages.... Didn't want people to remember me so sick looking. I was ashamed that I can't feel beautiful only because other people told me I'm too skinny. I promise anyone doubtful, I'm eating as much as can fit in! Eventually I decided that as long as there's any hair left, at least it can look as FABULOUS as curls should. I searched the internet for info about curls and natural hair, and found a whole curly community that exists out there! I started learning and fell in love with some amazing people who give tips and explain proper hair care, scientifically! In no time my hair started looking and feeling healthy, and it even grows a bit now! I wanted to document the transition, so had to confront taking pictures of myself. It's taken months, but my hair gave me the confidence that my medication had taken away, and I'm so grateful. Check out my favourites - mzbiancarenee (also has an awesome YouTube channel) and naturallycurly (also has a super informative website) There are so many more sources. So go get that bounce back! #curlyhair #curly #naturalhair #naturalcurls #naturalhairdaily #curlyhairdontcare #naturalhairdoescare #hairjourney #curlygirlmethod #hairofinstagram #instahair #devacurl #curlylove #deepconditioning #nomorenmo #devics #devicsdisease #myweightismybusiness *I know I usually post pics of Fennec, but felt the need to share this...

21 8 May 29, 2018

After a really good few days, #migraine is setting in! Trying the non-medicated route. #hearingsgone #migrainerelief #pain8 #pain #nausea #spoonie #spoonieproblems #epilepsy #fibromyalgia #devics #justkeepswimming #smiles #positivevibes

18 0 May 18, 2018

My mom text me this today. My sister is suffering from a rare disease with no cure. It is the most helpless feeling in the world not to have the ability to help make things right as an older sister. #FightNMO #NMOAwareness #NMO #Devics #sisters #HelpSpreadAwareness

34 6 May 26, 2018

Getting rid of body pain in #epsomsaltbath 🛀 whilst trying to get over another #migraine 🤯🤞🏼 #pain8 #fibromyalgia #epilepsy #devics #classicalmusic #bath #relax #spoonie #spoonieproblems #couldbeworse #smiles #positivevibes

30 5 May 23, 2018

The salty seas by devics it’s a good song. Sorry if it’s edgy. #sketch #sketchbook #song #music #relaxingmusic #vent #drawing #devics

26 3 May 25, 2018

Download the #BeMyEyes app to help a blind or visually impaired person see in their day to day activities!! You can accept calls via the app and use your phone camera to be the 👀 for the blind/visually impaired! Link in bio 👏🏻 . . . . #opticneuritis #neuromyelitisoptica #devics #multiplesclerosis #spoonielife #spoonie #volunteer #visuallyimpaired

20 0 Jun 3, 2018

Weekend Post #3: Got to visit Bay Area Friends and Family!! . . Because we were shooting in Santa Cruz, I got to stay with Neil and Bella, my son and his wife. We had a reunion of sorts with some of my friends from the L.A. 80's punk scene and bohemes from the old Onyx Cafe on Vermont. Tom Pendergast and Scott Hardman!! . . #actorslife #onloction #bayarea #sanfransisco #sanpablo #santacruz #punkrock #marykelly #sexandvilolins #devics #onyx #onyxsequel #lavenderscared

39 1 Jun 5, 2018
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