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Information related to #spoonielife

This is my face on drugs. How terrible is it that there is no cure for this awful disease? And when it gets to be TOO much, I need to be pumped full of pain killers that don’t give 100% relief. They just “take the edge off”. What a life. . . . . . #endometriosis #endometriosisawareness #endowarrior #endometriosisawarenessmonth #1in10 #chronicillness #endo #spoonie #chronicpain #endosisters #invisibleillness #infertility #endoawareness #endosister #endostrong #girlpower #pain #support #iam1in10 #endometriosiswarrior #spoonielife

3 2 Mar 22, 2018

Allow me to reintroduce myself for those of you who are new to my page and those of you who are not but don’t know who I am... . . . Yes, I share myself and my story with everyone. I put it ALL out there in hopes it might help and reach others that may live with the same illnesses I do. I don’t do this for affection, sympathy or attention. I don’t do this for anyone’s approval. I live my best life and try to help one person at a time. First and for most, I’m a wife and a mother. I live with 2 chronic illnesses (Gastroparesis and Diabetic Peripheral Neuropathy) and a dormant form of Leukemia. Gastroparesis (stomach paralysis) is my main illness. I had 3 exploratory surgeries last year, several ER visits and very many hospital stays. I still can’t eat much at a time without bloating, extreme nausea, some vomiting and horrible abdominal pain. Second is Neuropathy (nerve damage)... My feet have to be in front of a heater almost constantly and my medication is slowly having to be increased to help with the pain in my feet. I lost my job of over 11 & 1/2 years last summer because I can’t function like a normal person daily. Living with these illnesses is so debilitating and cause chronic fatigue. I am in pain and tired on a daily basis and eventually that messes with the mind. Depression, panic attacks and anxiety come along with living chronically. I have been blessed with an extremely supportive family and wouldn’t be able to get through this without them. I know there is judgment and people who don’t understand. You know what I say to that?? When they point, whisper and gossip, I realize it’s not about me, it’s about their own insecurities, limitations and ignorance. I have a lot to deal with everyday and others opinions is not one of them... XOXO💋 #thechronicdiaries #chronicallyfabulous #spoonielife #youropiniondoesntmatter #tryingtohelp #sharingmyjourney #mylifemystory #followalongornit #cancerfighter🎀 #gastroparesisfighter💚 #tryingtobringawareness #weneedacure

14 0 Mar 22, 2018

I haven't received all my blood work back yet. But I have gotten a few back and all are good except I had an elevated ANA which we already knew but were testing it again. Just waiting on a few other tests to come in and then I have to go back again to do more tests since I couldn't do all of them 🙄

16 1 Mar 22, 2018

Love your life more than you hate your pain I finished my painting. It took a little over a week and voila there it is. (He black thing on the side of the tree is supposed to be a woodpecker) It is kind of sad because it is the view from that house that we used to stay at every summer but I also love it. I had said a while ago that we were doing the Endoscopic ultrasound instead of the HIDA scan. But yesterday the HIDA was scheduled for about a week after the ultrasound.

14 1 Mar 22, 2018

attention able-bodied & neurotypical people, accessible doesn't mean easy. easy is relative. what's easy to you isn't necessarily easy to someone else, regardless of the current state of their body or mind. people have different abilities based on experience, body structure, etc. there are multiple ways to do most anything. that doesn't mean that one way is inherently easier or harder than another way. what may be hard for you may be easy for someone else and vice versa. and you don't get to decide what's easy & what's hard for someone else. i'm seriously about to start losing it in person with people over this. if i have to hear one more 100lb yoga teacher tell me that if i'm not "strong enough" to do the full pose that i can modify it, i'm going to sit my 250lb ass on them and ask them how strong they are. if you haven't ever had to go through the day with constant reminders of a trauma you've survived, you don't get to decide what's easy. if you don't wake up every day without knowing if you're going to have to fight your own thoughts & feelings, you don't get to decide what's easy. stop assuming you're 'normal' & others are less than because they're different. stop thinking the way they do things is easy or less than. & definitely stop thinking that, if only we could, we'd do it like you do. #youcanyoga #yogaforall #yoga #yogaforeverybody #everybodyisayogabody #spoonieyoga #yogaforspoonies #spoonielife #spoonieliving #accessibleyoga #curvyyoga #fatyoga #endfatshaming #spoonies #spoonie #whatayogilookslike #bodypositiveyoga #bopo #disabilityjustice #decolonizingfitness #healingjustice #healingthroughmovement #fitnessforallbodies #weightneutrality #chronicallyfabulous #disability #chronicpainwarrior #InvisibleIllness #truthbomb #ableism

10 1 Mar 22, 2018

I feel the most unhealthiest at this moment since I haven't been practicing yoga in the last couple of weeks. For some weird reason everytime I'm in NYC I don't pull out my yoga mat. So today since there was a snow storm and I couldn't walk all day (or didn't feel like freezing my ass) like I normally do when in the city I decided to go to the gym which I must say felt nice. Ps. I didn't have sneakers so I just wore my Dr. Martens. 🌻 #namaste #gymtime #nyc #brooklyn #me #spoonielife #spoonie #drmartens

18 1 Mar 22, 2018

Life with this hanging out your nose is the shits, I hate every second of it, until your adorable nieces bring up your mail because well let's face it I can hardly walk today because of your hips. Kaylee looks at it and says "Well I like that sticker auntie" then riri (my hookie playin lovable sidekick) giggled and says ya that's cool!. Made my damned day! Big thanks to my grandma judyvalkenaar for helping me daily with my son you have no idea how much I love you and appreciate it. Thank you mom galaxygrind for getting Kaylee today I just couldn't even get down the stairs if I tried and tracivalkenaar for coming here and letting me cry on your shoulder because you know I needed it. This is life with a disease. I say thank you all the time but I felt like today I really needed to let you know I love you all. #scleroderma #crestsyndrome #raynauds #spoonielife #zebralife #Gastroparesis #IGAdeficiancy #GERD #lifeschallenges #bilateralhipdysplasia #ehlorsdanlos #connectivetissuedisease #factor5leiden #itsgointotakeavilliage

4 0 Mar 22, 2018

I am walking in the darkness of my illness... I can see the darkness closing in, see the blackness on the horizon. I can see the smoke rings in the sky, streets are paved with empty words, signs of life all obscured Getting money, getting love, getting fed, getting fucked up human nature, it's human nature. #humannature #caughtaghostlyric #instaspoonies #familialdysautonomia #spoonielife #familialamylaidosis #jewishgirl🇮🇱 #sittinginthedarkness #fallenangel #congenitalhipdysplasia #blackwings # #recalcitrantgastroparesis

4 0 Mar 22, 2018

So I’m kinda #stoked right now because ☝🏼It rained here in #SoCal & the #Oregonian in me was like ☔️ 🕺🏻 And ✌🏼 I found out I have yet another auto immune disease which at this point you’re probably wondering (wth is wrong with this woman..but hear me out 😂) I’m NOT glad I have it but I am glad to finally be vindicated because I knew I had it 2 years ago 🙄 but my dr didn’t believe me & refused to send me to a specialist 😑 #StoryOfMyLife Guess what happened to her? I fired her 😝 So 💥 Hey #Doctors, Listen to your patients! They actually know their bodies better than you do. 😯 #ShockingIKnow Cool thing to note, the Dermatologist said he wasn’t used to seeing #vitiligo get better rather than worse & asked what I’d been doing to address it. 😮 So I got to talk to him about cleaning up toxins from my home/body care, diet changes, detoxing methods, supplements to combat auto immunity & stress reducers. It was so refreshing to find a doctor who’s willing to think outside the “medication only” mindset. His response was “Keep it up, it’s obviously preventing further pigmentation loss which is helping reduce the immune attack”👌🏼 It was super great to hear that the things I’ve been doing for years are actually helping despite how horrible I feel. If I’ve learned anything in these 12 years dealing with chronic illness it’s that my intuition has been 💯 on the money with my health. And I don’t have the time or health to waste with a doctor who won’t listen👂🏼 Unfortunately 90% I’ve come across don’t & I’ve been left to figure out the maze of auto immunity on my own. But I’m better for it & hopefully one day it’ll help someone else. 🤷🏻‍♀️ All this to say, no one knows your body like you & your health is worth fighting for whether it’s finding a Dr who will listen or persevering with lifestyle changes that seem to be not making a difference. They actually are & could be keeping other diseases at bay or current ones from doing more damage.

10 3 Mar 22, 2018

COFFEE & NETFLIX Breakfast vibes and accepting rest today.

11 3 Mar 22, 2018

All this SUNSHINE has me feeling SO good!!! I feel like the video game characters that just got three extra lives 😂 I seriously can’t function right without the ☀️ and the winters around the PNW are dreary! Anyone else feel this way? YAY SUN! ☀️ I can’t WAIT for summer!

7 1 Mar 22, 2018

Since some working/training videos were requested, here’s a 45 second video of our Target outing last week! 💗 a lil lazy but we’re gonna get a better way to film training 😂 so little space made it awkward. We did some tricks, reviewed “hold” with fabric leashes, and showed off our rear end awareness with heel, block and cover. Oh, and showed off our new gear too 🔥💯😉 🎶 Song: Live in the Moment by Portugal. The Man ——— Video Description: The video is a montage of training clips. The camera is pointed at a small isle in target, with Jasmine and her handler walking back and forth and practicing different tasks, tricks and skills. Some tricks like bow, backup, and touch are shown, tasks included are block, cover and leash retrievals. Rear end awareness, loose leash walking and hold/carry skills are shown as well. ——— 📽 3/21/18 • 🐕 4 Years

52 2 Mar 22, 2018

Não importa como tenha sido seu dia, sempre agradeça! “Lembre-se: na infinita vastidão da vida, tudo é perfeito, pleno e completo... E você também é!” Louise Hay #BoaNoite #gratidao #gratitude #faith #louisehay #amor #força #spoonie #spoonielife

14 1 Mar 22, 2018 © 2017. Website is based on Instagram API, images, photos and media information displayed on this website is owned by Instagram.