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And guess what!! My first snowman! 😆 I’m 21 and finally had enough snow to build this little guy. I dubbed him Olaf, of course. I’m just over the moon with the glory outside and I don’t really care if people think it’s silly. I have wanted a true snow for my entire life and it’s finally here after one of the most difficult year and a half of my life and I do not take that for granted. I am going to enjoy every second I have of this fluffy bliss, and commemorate, and remember in every way I can. #snowstorm2018 #spoonielife #spooniestrong #ehlersdanlossyndrome #mastcellactivationsyndrome #fibromyalgia #gastroparesis #undiagnosed #raynauds

0 0 Jan 17, 2018

Our #MoveAgainstMigraine community is determined to make 2018 a better year for the millions of Americans living with this disease. If you're looking for innovative ways to manage your migraine, or just need some moral support, we’re here for you. Read our 2018 resolutions here, and share yours below.⠀

11 1 Jan 17, 2018

Check in time. How are you feeling? 👍 or 👎?

8 3 Jan 17, 2018

Prepped lunch for me and the hubby to take to work tomorrow - chilli, ginger and lime salmon fillet with mini spuds and spicy stir fried sugar snap peas 👌🏼😋 a healthy, balanced and colourful diet is really important for health and fitness in general, but especially important when trying to manage a chronic health condition too. I’m making a real effort to eat well for 2018 as I know all too well how easy it is to order a take out after work when I’m tired and out of spoons instead of cooking... it never makes me feel anything other than sluggish, restless and tired though! All these home cooked wholesome foods are definitely worth making now that I’m in a routine with it. My bowel is working much better, I’m more comfortable, and my hair and skin are improved. Hoping my energy levels improve next! #eattherainbow #healthylifestyle #healthandfitness #healthandwellness #eatwell #fibro #fibromyalgia #fibromyalgiaawareness #fibromyalgiawarrior #fuckfibro #chronicillness #chronicpain #chronicfatigue #spoonielife

3 0 Jan 17, 2018

Another day, another clinic 😴

13 2 Jan 17, 2018

Prime time travel season is right around the corner so check out the newest blog post on Buddha Belly to see what travel essentials every fashionista needs when they pack their bags! Link is in my profile. 😍 #ootd #vacay #vacation #outfitoftheday #fashionblogger #fblogger #scsister #stylecollective #fashiondiaries #bossgirlbloggers #midwestbloggers #chicagobloggers #fashiongram #styleblogger #travel #vacation #spoonie #spoonielife #whatiwore #lookbook #instastyle #fashionpost #currentlywearing #ootdshare #outfitpost #fashionblog #mylook #lookoftheday #wiw #fashonaddict

49 3 Jan 17, 2018

A little push for those of you who are having a bad day and dealing with a lot of issues...I am very proud of you all! Keep fighting ✨👑💓💞 #multiplesclerosis #multiplesclerosisfighter #multiplesclerosiswarrior #ms #mswarrior #msfighter #autoimmune #autoimmunedisease #chronicillness #chronicpain #curems #kickms #mssucks #spoonie #spoonielife #vlogger #blogger #motivation

10 1 Jan 17, 2018

So I went a bit crazy in the sales with new Zumba tops so sorry if you get bored of endless selfies 😂 I love bright colours and especially when it's dark, cold and rainy (I really don't do winter) wearing something cheerful lifts my mood 😄There's still an offer running with zumbawithanisha to get your first class free for new students in January so do check her out! #zumbagirl #zumba #zumbafitness #zumbalove #spoonie #zumberas #spoonielife #msfighter #mswarrior #multiplesclerosis #ms #chronicillness #chronicillnesswarrior #autoimmunewarrior #autoimmunedisease #dancerslife #everyonecandance #lovedance #dance #dancer #zumbacommunity #instagood #maidenhead #marlow #slough #highwycombe #berkshire #buckinghamshire #henley

15 1 Jan 17, 2018

Thankful for lunches from prep (organic garlic chicken with sautéed organic zucchini & cremini mushrooms) especially on flare days like today when I have zero energy. God is good and His Grace is still sufficient. #heneverletsgo #jesusmyhealer #eatrealfood #antiinflammatory #lupuswarrior #spoonielife #mealprep

0 0 Jan 17, 2018

That moment when you’re trying to get a shot of icicles and end up with shots of yourself because you can’t fe your fingers. 😂 #thisismycoldphotographerface #snow #snowstorm2018 #spoonielife

0 0 Jan 17, 2018

No more summer holidays! _ The girls are back at preschool again today (they’re doing 3 days a week this year as my freelancing work required it! I’m now writing, editing and continuing with VA services 🙌🏼) Jacob is back to work today, and while I had the best quality time with my family this past month, I’m really thankful for some time by myself today. I need these solo days to reenergise. I don’t know how much of it is introversion, or Aspie-ness, but no matter how much I’m enjoying myself in the company of others, I can feel my battery depleting in the same way hunger creeps into you. I lose energy, I get a foggy brain, I lose the ability to speak full sentences and I can’t make decisions. Bleurgh. But a solid chunk of time alone (even working, probably especially if I’m working), and I feel like I’ve had a sleep! Or a hearty meal. Ready to take on and enjoy my next interactions at full force 😊 _ My good fortune at being able to work part time, for myself, and for the girls to be able to go to preschool, isn’t lost on me. Thank you jduplooy for working so hard for our family, and also for taking four weeks off while the girls were on preschool break, in part so that I wouldn’t get burnt out being on 24/7 solo mum duty. I love you ❤️

5 1 Jan 17, 2018

Ok I have piriton-ed and covered my entire body with calamine cream - fingers crossed for a better night! ( Only swipe 👈🏼if you’re ready to see lots of hives) - - - - - #urticaria #myalgicencephalomyelitis #chronicfatigue #chronicillness #invisibleillness #notsoinvisibletoday #meawareness #invisibleillnessawareness #spoonie #spooniecommunity #spoonielife #soooooitchy #calamine #antihistamine

4 1 Jan 17, 2018

We try to smile through it all.... Urgh... why do things have to be so difficult... Today actually was a good day! I managed to stay awake ALL day!! I made cheesecake for my husband and kiddies (I had a small slice). I got a bit of household shopping done. I cleaned the bathroom. I put clothes away. Today I was winning. Tomorrow is yet to come..... #fibro #warrior #fibrosupport #letshelp #chronic #chronicillness #spoonie #support #chronicsupport #fibromyalgia #spoonielife #painlevel #family #deepheat #pressure #spasms #knee #kneepain #headache #doctor #medication #anxiety #selfhelp

6 0 Jan 17, 2018

so you might not think this bowl of turkey chili is a #transformationtuesday but it totally is you see, in the past when I would get hit with an endo flare I would stay in bed for days at time eating nothing but pop tarts, oreos and jars of frosting + lots of pain killers 🍭🍬🍩 and now I press play on my workout, modify the modifier 🤸🏼‍♀️and stick to my meal plan - like this amazing bowl of homemade turkey chili + cauli rice and allow my body to rest when needed celebrate the small wins, be patient and just love yourself along the way babe bc it all adds up to real CHANGE 💗

4 1 Jan 17, 2018
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